OnCo

Create your OnCo account

One account keeps your watchlist, saved views and cancer choice in sync across your devices, and lets OnCo alert you when a trial or treatment you follow changes. No password: we email you a sign-in link.

Account creation is being switched on. Until then, press Watch on any page and your list stays in this browser.

Living with cancer· Appointment prep

Appointment sheet: Penile cancer

One page to bring and write on: your details, the questions for Penile cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Penile cancer

Prepared with OnCo (onco.cc/prep/penile/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

15 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example p16 IHC / HPV DNA status, Grade and lymphovascular invasion of the primary, Inguinal and pelvic nodal stage, PD-L1 expression, TP53 and CDKN2A status), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Primary tumour
  1. 5.For my situation (primary tumour), which of the standard options do you recommend and why?
Clinically node-negative, intermediate or high-risk primary
  1. 6.For my situation (clinically node-negative, intermediate or high-risk primary), which of the standard options do you recommend and why?
Node-positive
  1. 7.For my situation (node-positive), which of the standard options do you recommend and why?
  2. 8.Am I a candidate for Paclitaxel / nab-paclitaxel, Cisplatin, Ifosfamide, and what side effects should I expect?
Metastatic or recurrent
  1. 9.For my situation (metastatic or recurrent), which of the standard options do you recommend and why?
  2. 10.Am I a candidate for Cisplatin, Paclitaxel / nab-paclitaxel, Pembrolizumab or related drugs, and what side effects should I expect?
Any stage
  1. 11.Are there clinical trials I could join, for example of Pembrolizumab, Cemiplimab, HPV & HBV vaccination?
  2. 12.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 13.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 14.I read that “Node-positive disease: the best sequence of chemotherapy, radiotherapy and surgery is unknown; InPACT is designed to answer it”. How does that affect my plan?
  5. 15.I read that “No approved systemic therapy beyond cisplatin combinations; checkpoint inhibitor trials (often HPV-stratified) are recruiting”. How does that affect my plan?

The words I may hear

Tests and results to bring

Biomarker results to ask for: p16 IHC / HPV DNA status, Grade and lymphovascular invasion of the primary (decides sentinel node biopsy), Inguinal and pelvic nodal stage (extranodal extension, number of nodes), PD-L1 expression (investigational), TP53 and CDKN2A status (HPV-independent tumours).

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

  • Primary tumour: Organ-sparing treatment where feasible (glansectomy, glans resurfacing, wide local excision, laser or brachytherapy); partial or total penectomy reserved for extensive tumours. (Brachytherapy, Mohs surgery)
  • Clinically node-negative, intermediate or high-risk primary: Dynamic sentinel node biopsy (or modified inguinal lymphadenectomy where unavailable); observation only for low-risk primaries. (Sentinel lymph node biopsy)
  • Node-positive: Radical inguinal lymphadenectomy; pelvic lymphadenectomy and adjuvant chemotherapy or chemoradiation for extensive disease; neoadjuvant TIP for bulky or fixed nodes (InPACT is testing the sequence). (Lymphadenectomy (lymph node dissection), Paclitaxel / nab-paclitaxel, Cisplatin, Ifosfamide)
  • Metastatic or recurrent: Cisplatin-based chemotherapy (TIP); checkpoint inhibitors in trials or where approved for tumour-agnostic indications; palliative radiotherapy. (Cisplatin, Paclitaxel / nab-paclitaxel, Pembrolizumab, Cemiplimab)

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call