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Living with cancer· Appointment prep

Appointment sheet: Biochemical recurrence of prostate cancer

One page to bring and write on: your details, the questions for Biochemical recurrence of prostate cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Biochemical recurrence of prostate cancer

Prepared with OnCo (onco.cc/prep/prostate-bcr/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

16 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example PSA and PSA doubling time, PSMA PET, Decipher on the prostatectomy specimen, Interval from local therapy to recurrence), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
After prostatectomy
  1. 5.For my situation (after prostatectomy), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Decipher Prostate, and what side effects should I expect?
After radiotherapy, local recurrence
  1. 7.For my situation (after radiotherapy, local recurrence), which of the standard options do you recommend and why?
High-risk biochemical recurrence (doubling time under 9 months)
  1. 8.For my situation (high-risk biochemical recurrence (doubling time under 9 months)), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Enzalutamide, Leuprolide (leuprorelin) and GnRH agonists, and what side effects should I expect?
  3. 10.How do the results of EMBARK apply to someone like me?
PSMA PET-detected oligorecurrence
  1. 11.For my situation (psma pet-detected oligorecurrence), which of the standard options do you recommend and why?
Any stage
  1. 12.Are there clinical trials I could join, for example of PSMA PET, Enzalutamide, SBRT / SABR (stereotactic radiotherapy), PSMA-PET-guided metastasis-directed therapy as a curative strategy in oligorecurrent prostate cancer?
  2. 13.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 14.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 15.I read that “Whether treating PSMA PET-detected metastases early lengthens life or only lowers PSA”. How does that affect my plan?
  5. 16.I read that “How to spare men with slow doubling times from years of hormone therapy”. How does that affect my plan?

The words I may hear

  • Oligometastatic disease: Cancer that has spread to only a few places, which may still be curable by treating each spot.
  • PSA (prostate-specific antigen): A blood protein made by the prostate; raised levels prompt further tests, and falling levels show treatment is working.

Tests and results to bring

Biomarker results to ask for: PSA and PSA doubling time, PSMA PET (positive in most men above 0.5 ng/mL), Decipher on the prostatectomy specimen, Interval from local therapy to recurrence.

Scans and tests linked to this cancer: Active surveillance, PSMA PET, RNA sequencing & expression profiling.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call