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Living with cancer· Appointment prep

Appointment sheet: Recurrent or metastatic cervical cancer

One page to bring and write on: your details, the questions for Recurrent or metastatic cervical cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Recurrent or metastatic cervical cancer

Prepared with OnCo (onco.cc/prep/recurrent-metastatic-cervical-cancer/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

21 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example PD-L1 combined positive score, Tissue factor expression, HER2 immunohistochemistry, HPV type and circulating HPV DNA, Prior pelvic radiotherapy and fistula risk), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
First line
  1. 5.For my situation (first line), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Pembrolizumab, Cisplatin, Carboplatin or related drugs, and what side effects should I expect?
  3. 7.How do the results of KEYNOTE-826 and BEATcc / ENGOT-Cx10 / GOG-3030 apply to someone like me?
Second line after platinum
  1. 8.For my situation (second line after platinum), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Tisotumab vedotin, Cemiplimab, and what side effects should I expect?
  3. 10.How do the results of innovaTV 301 / ENGOT-cx12 / GOG-3057 and EMPOWER-Cervical 1 / GOG-3016 / ENGOT-cx9 apply to someone like me?
HER2-expressing disease
  1. 11.For my situation (her2-expressing disease), which of the standard options do you recommend and why?
  2. 12.Am I a candidate for Trastuzumab deruxtecan, and what side effects should I expect?
  3. 13.How do the results of DESTINY-PanTumor02 apply to someone like me?
Later lines
  1. 14.For my situation (later lines), which of the standard options do you recommend and why?
  2. 15.Am I a candidate for Topotecan, Gemcitabine, Sacituzumab tirumotecan or related drugs, and what side effects should I expect?
Isolated pelvic recurrence after radiotherapy
  1. 16.For my situation (isolated pelvic recurrence after radiotherapy), which of the standard options do you recommend and why?
Any stage
  1. 17.Are there clinical trials I could join, for example of Sacituzumab tirumotecan, Trastuzumab deruxtecan, Lifileucel, Cadonilimab?
  2. 18.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 19.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 20.I read that “Sequencing antibody-drug conjugates and immunotherapy after first-line chemo-immunotherapy”. How does that affect my plan?
  5. 21.I read that “Fistula and bleeding risk with bevacizumab after pelvic radiotherapy”. How does that affect my plan?

Tests and results to bring

Biomarker results to ask for: PD-L1 combined positive score, Tissue factor expression (not required for tisotumab vedotin), HER2 immunohistochemistry (trastuzumab deruxtecan), HPV type and circulating HPV DNA, Prior pelvic radiotherapy and fistula risk (bevacizumab), MSI and tumour mutational burden (rare).

Scans and tests linked to this cancer: MRD / molecular residual disease testing.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call