Appointment sheet
Sertoli cell tumour of the testis
Prepared with OnCo (onco.cc/prep/sertoli-cell-tumour/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
6 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Inhibin, calretinin and nuclear beta-catenin; germ cell markers negative, CTNNB1 exon 3 mutation, Size, necrosis, vascular invasion, atypia and mitotic count, Peutz-Jeghers or Carney syndrome features in boys), and what were the results?
- 3.Is germline (inherited) genetic testing recommended for me or my family?
All cases
- 4.For my situation (all cases), which of the standard options do you recommend and why?
Any stage
- 5.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 6.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- Carney complex: Carney complex is a rare inherited condition that causes spotty pigmentation of the skin and lining of the mouth, heart tumours called myxomas, and tumours of the hormone glands, skin and nerves.
- Peutz-Jeghers syndrome: Peutz-Jeghers syndrome is an inherited condition, caused by a fault in the STK11 gene, that causes freckling of the lips and mouth and polyps in the bowel from childhood, and raises the risk of several cancers in adult life.
Tests and results to bring
Biomarker results to ask for: Inhibin, calretinin and nuclear beta-catenin; germ cell markers negative, CTNNB1 exon 3 mutation, Size, necrosis, vascular invasion, atypia and mitotic count (malignancy risk), Peutz-Jeghers or Carney syndrome features in boys.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All cases: Orchidectomy, testis-sparing in syndromic boys; node dissection for malignant features; no systemic therapy has proven benefit in metastatic disease, so trials and referral to a specialist testicular centre are the route. (Testicular germ cell tumours)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call