A national repository of radiotherapy dose plans linked to outcomes
Radiotherapy machines record exactly how much dose every organ received, but the data are thrown away. Collect them and link to toxicities and cures to learn the safest, most effective doses.
Every treated patient has a DICOM-RT plan with voxel-level dose to tumour and organs at risk. Pooled with outcomes, this supports data-driven dose constraints, toxicity models and quality benchmarking. The Netherlands and the English Radiotherapy Dataset have partial national data; the proposal makes automated plan deposition (DICOM-RT structures and dose) plus registry linkage universal, with governed access for research and quality improvement.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
- Surgery and radiotherapy cure most, get least · Surgery and radiotherapy cure more people than drugs do, but attract a fraction of the research investment.
- Toxicity and quality of life are undervalued · Trials measure how long people live, not how they live. Side-effects are under-reported and under-treated.
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- InstitutionAarhus University Hospital
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