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Living with cancer· Appointment prep

Appointment sheet: Anal cancer (squamous cell carcinoma)

One page to bring and write on: your details, the questions for Anal cancer (squamous cell carcinoma) plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Anal cancer (squamous cell carcinoma)

Prepared with OnCo (onco.cc/prep/anal/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

17 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example HPV / p16 status, HIV status and CD4 count, T and N stage, PD-L1, ctHPV DNA), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Precancer (HSIL) in people with HIV
  1. 5.For my situation (precancer (hsil) in people with hiv), which of the standard options do you recommend and why?
Localised (stage I-III)
  1. 6.For my situation (localised (stage i-iii)), which of the standard options do you recommend and why?
  2. 7.Am I a candidate for Mitomycin C, Fluorouracil (5-FU), and what side effects should I expect?
Persistent or recurrent local disease
  1. 8.For my situation (persistent or recurrent local disease), which of the standard options do you recommend and why?
Metastatic, first line
  1. 9.For my situation (metastatic, first line), which of the standard options do you recommend and why?
  2. 10.Am I a candidate for Retifanlimab, Carboplatin, Paclitaxel / nab-paclitaxel, and what side effects should I expect?
Metastatic, later lines
  1. 11.For my situation (metastatic, later lines), which of the standard options do you recommend and why?
  2. 12.Am I a candidate for Nivolumab, Pembrolizumab, and what side effects should I expect?
Any stage
  1. 13.Are there clinical trials I could join, for example of Retifanlimab, Circulating tumour HPV DNA (ctHPV-DNA), HPV & HBV vaccination?
  2. 14.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 15.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 16.I read that “Screening programmes for high-risk groups exist almost nowhere despite ANCHOR”. How does that affect my plan?
  5. 17.I read that “Late toxicity of pelvic chemoradiation (bowel, sexual, bone)”. How does that affect my plan?

The words I may hear

Tests and results to bring

Biomarker results to ask for: HPV / p16 status, HIV status and CD4 count, T and N stage (MRI, PET-CT), PD-L1 (not required), ctHPV DNA (emerging), Anal cytology / high-resolution anoscopy (screening in high-risk groups).

Scans and tests linked to this cancer: DPYD genotyping and DPD phenotyping before fluoropyrimidines, HPV DNA testing and self-sampling, Circulating tumour HPV DNA (ctHPV-DNA), Colposcopes and digital cervical screening devices (DYSIS, EVA System, AVE).

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call