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Living with cancer· Appointment prep

Appointment sheet: Burkitt lymphoma

One page to bring and write on: your details, the questions for Burkitt lymphoma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Burkitt lymphoma

Prepared with OnCo (onco.cc/prep/burkitt-lymphoma/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

17 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example MYC rearrangement, t, t) by FISH, EBV status, Ki-67 near 100%, ID3, TCF3, CCND3 mutations, Lactate dehydrogenase and uric acid), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Children and adolescents, all stages
  1. 5.For my situation (children and adolescents, all stages), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Rituximab, Cyclophosphamide, Methotrexate or related drugs, and what side effects should I expect?
  3. 7.How do the results of Inter-B-NHL Ritux 2010 apply to someone like me?
Adults
  1. 8.For my situation (adults), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Rituximab, Cyclophosphamide, Doxorubicin or related drugs, and what side effects should I expect?
Resource-limited settings
  1. 10.For my situation (resource-limited settings), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Cyclophosphamide, and what side effects should I expect?
Relapsed or refractory
  1. 12.For my situation (relapsed or refractory), which of the standard options do you recommend and why?
Any stage
  1. 13.Are there clinical trials I could join, for example of Inter-B-NHL Ritux 2010, CAR-T cell therapy, Global oncology and access in low- and middle-income countries?
  2. 14.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 15.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 16.I read that “Relapsed Burkitt lymphoma is rarely curable; CD19-directed CAR-T and bispecifics are being tested”. How does that affect my plan?
  5. 17.I read that “Cure rates in sub-Saharan Africa remain far below high-income countries; adapted protocols, rituximab access and supportive-care investment are the response”. How does that affect my plan?

The words I may hear

  • Lymphoma (tissue type): Cancer of lymphocytes, the white blood cells of the immune system, usually growing as masses in lymph nodes, spleen or other organs.
  • Tumour lysis syndrome (TLS): When a treatment kills cancer cells faster than the body can clear their contents, flooding the blood with potassium, phosphate and uric acid and injuring the kidneys and heart.
  • Epstein-Barr virus (EBV) in cancer: The common glandular-fever virus, carried lifelong by most adults, which in a minority of people drives nasopharyngeal cancer, some stomach cancers and several lymphomas.

Tests and results to bring

Biomarker results to ask for: MYC rearrangement (t(8;14), t(2;8), t(8;22)) by FISH, EBV status (EBER), Ki-67 near 100%, ID3, TCF3, CCND3 mutations, Lactate dehydrogenase and uric acid (tumour lysis risk), Bone marrow and cerebrospinal-fluid involvement (stage IV / leukaemic).

Scans and tests linked to this cancer: Cytogenetics and FISH.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call