Appointment sheet
Small cell neuroendocrine carcinoma of the cervix
Prepared with OnCo (onco.cc/prep/cervical-small-cell-neuroendocrine-carcinoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
8 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Synaptophysin, chromogranin and INSM1, HPV18 and p16, Node and distant staging including brain imaging, Ki-67), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 5.For my situation (all stages), which of the standard options do you recommend and why?
- 6.Am I a candidate for Cisplatin, Etoposide, Atezolizumab, and what side effects should I expect?
Any stage
- 7.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 8.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- HPV-positive (p16) head and neck cancer: Throat cancers caused by the human papillomavirus, identified by a p16 stain.
- Chemoradiation (chemoradiotherapy, CRT): Radiotherapy given at the same time as chemotherapy, which sensitises the cancer to radiation.
Tests and results to bring
Biomarker results to ask for: Synaptophysin, chromogranin and INSM1, HPV18 and p16, Node and distant staging including brain imaging, Ki-67 (very high).
Scans and tests linked to this cancer: MRD / molecular residual disease testing.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Surgery or chemoradiation by stage, always with platinum and etoposide as for small cell lung cancer; checkpoint inhibitors by analogy with extensive-stage small cell lung cancer. (Cervical cancer, Extrapulmonary neuroendocrine carcinoma, Cisplatin, Etoposide, Atezolizumab, Chemoradiation (chemoradiotherapy, CRT))
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call