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Living with cancer· Appointment prep

Appointment sheet: Localised prostate cancer, high and very high risk

One page to bring and write on: your details, the questions for Localised prostate cancer, high and very high risk plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Localised prostate cancer, high and very high risk

Prepared with OnCo (onco.cc/prep/prostate-high-risk/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

16 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example Gleason Grade Group 4 or 5, PSA above 20 ng/mL, PSMA PET staging, Germline and tumour HRR testing, Decipher genomic classifier), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
High risk
  1. 5.For my situation (high risk), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Leuprolide (leuprorelin) and GnRH agonists, Degarelix, Relugolix, and what side effects should I expect?
  3. 7.How do the results of HYPO-RT-PC apply to someone like me?
Very high risk and node-positive
  1. 8.For my situation (very high risk and node-positive), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Abiraterone acetate, and what side effects should I expect?
  3. 10.How do the results of STAMPEDE and proPSMA apply to someone like me?
After prostatectomy with adverse pathology
  1. 11.For my situation (after prostatectomy with adverse pathology), which of the standard options do you recommend and why?
Any stage
  1. 12.Are there clinical trials I could join, for example of PSMA PET, ArteraAI Prostate, Decipher Prostate, Abiraterone acetate?
  2. 13.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 14.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 15.I read that “How long hormone therapy should last when abiraterone is added”. How does that affect my plan?
  5. 16.I read that “Whether PSMA PET-detected nodes should change treatment when the trials were staged conventionally”. How does that affect my plan?

The words I may hear

Tests and results to bring

Biomarker results to ask for: Gleason Grade Group 4 or 5, PSA above 20 ng/mL, PSMA PET staging, Germline and tumour HRR testing (BRCA2 in particular), Decipher genomic classifier.

Scans and tests linked to this cancer: Active surveillance, PSMA PET, Digital pathology & AI, RNA sequencing & expression profiling.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call