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Appointment sheet: Localised prostate cancer, very low and low risk

One page to bring and write on: your details, the questions for Localised prostate cancer, very low and low risk plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Localised prostate cancer, very low and low risk

Prepared with OnCo (onco.cc/prep/prostate-low-risk/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

16 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example PSA and PSA density, Gleason Grade Group 1 on biopsy, MRI PI-RADS score, Genomic classifier, Germline BRCA2 testing when family history warrants), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Very low and low risk, preferred
  1. 5.For my situation (very low and low risk, preferred), which of the standard options do you recommend and why?
  2. 6.How do the results of ProtecT apply to someone like me?
Low risk, men who prefer treatment
  1. 7.For my situation (low risk, men who prefer treatment), which of the standard options do you recommend and why?
  2. 8.How do the results of CHHiP and PACE-B apply to someone like me?
Diagnosis
  1. 9.For my situation (diagnosis), which of the standard options do you recommend and why?
  2. 10.Am I a candidate for Decipher Prostate, ArteraAI Prostate, and what side effects should I expect?
  3. 11.How do the results of PRECISION apply to someone like me?
Any stage
  1. 12.Are there clinical trials I could join, for example of ArteraAI Prostate, Decipher Prostate, Multiparametric prostate MRI (PI-RADS)?
  2. 13.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 14.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 15.I read that “Which Grade Group 1 cancers will upgrade, and whether Grade Group 1 should be called cancer at all”. How does that affect my plan?
  5. 16.I read that “How often to repeat biopsy on surveillance and whether MRI alone can replace it”. How does that affect my plan?

The words I may hear

Tests and results to bring

Diagnosis: MRI before biopsy and targeted plus systematic cores; genomic classifiers or AI pathology to refine surveillance decisions.

Biomarker results to ask for: PSA and PSA density, Gleason Grade Group 1 on biopsy, MRI PI-RADS score, Genomic classifier (Decipher, Oncotype DX GPS, Prolaris), Germline BRCA2 testing when family history warrants.

Scans and tests linked to this cancer: Active surveillance, Multiparametric prostate MRI (PI-RADS), Digital pathology & AI, RNA sequencing & expression profiling.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call