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A new US foundation for people whose cancer has spread to the lining of the brain and spinal cord (leptomeningeal disease), offering education webinars and working to expand access to trials and research.
The Leptomeningeal Cancer Foundation was started by Helaine Bader and Doug Skinner, the parents of Theo Skinner, who died in February 2024 at 17 after a rare tumour of the meninges spread to his leptomeninges, according to its about page. Its stated aims are to build a community of patients, carers, health professionals and cancer organisations; to educate patients and the scientific community; to widen access to clinical trials and care pathways by bringing cross-institutional experts together to review complex cases; and to support collaborative research. Its site runs free webinars on living with leptomeningeal disease and lists centres of excellence and clinical trials. It gives its EIN as 99-4028085; the IRS lists it in Broomfield, Colorado, with tax exemption from February 2025.
Shares Rare Cancer Research Foundation, Brain and spinal cord tumours (all types).
Shares Rare Cancer Research Foundation, Brain and spinal cord tumours (all types).
Shares Brain metastases (secondary brain tumours), Brain and spinal cord tumours (all types).
Shares Brain metastases (secondary brain tumours), Brain and spinal cord tumours (all types).
Shares Brain metastases (secondary brain tumours), Brain and spinal cord tumours (all types).
Shares Rare Cancer Research Foundation, Brain and spinal cord tumours (all types).
Shares Brain metastases (secondary brain tumours), Brain and spinal cord tumours (all types).
Shares Brain metastases (secondary brain tumours), Brain and spinal cord tumours (all types).
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