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A US charity, started by the family of a teenager who had glioblastoma, that funds shared research-data platforms for childhood brain tumours such as CAVATICA.
Dragon Master Initiative states its mission as finding and accelerating cures for cancers and other rare diseases by fostering a community of collaboration, with a special focus on childhood brain cancers. Its about page says it was started by the parents of David, who was diagnosed with glioblastoma at 16 in September 2010 and died in May 2012; tissue he donated after death was shared with researchers through the Children's Brain Tumor Network. The same page says the charity began funding CAVATICA, a cloud platform for storing, sharing and analysing childhood tumour genomic data built with funding from the NIH Common Fund, through its partnership with that network, and that it works with Amazon Web Services and the Children's Brain Tumor Network on an AI tool for research data. Its home page also lists patient navigation, help with travel for clinical trial care and advocacy to the NIH, NCI and FDA. It is on the Rare Cancer Research Foundation's list of patient advocacy partners; the IRS record (as Dragon Master Initiative Inc) places it in Windermere, Florida.
Shares Rare Cancer Research Foundation, Brain and spinal cord tumours (all types), Childhood cancers (all types).
Shares Brain and spinal cord tumours (all types), Childhood cancers (all types).
Shares Rare Cancer Research Foundation, Brain and spinal cord tumours (all types).
Shares Paediatric high-grade glioma (excluding diffuse midline glioma), Brain and spinal cord tumours (all types), Childhood cancers (all types).
Shares Rare Cancer Research Foundation, Childhood cancers (all types).
Shares Brain and spinal cord tumours (all types), Glioma & glioblastoma.
Shares Paediatric high-grade glioma (excluding diffuse midline glioma), Childhood cancers (all types).
Shares Brain and spinal cord tumours (all types), Glioma & glioblastoma.
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