OnCo

Create your OnCo account

One account keeps your watchlist, saved views and cancer choice in sync across your devices, and lets OnCo alert you when a trial or treatment you follow changes. No password: we email you a sign-in link.

Account creation is being switched on. Until then, press Watch on any page and your list stays in this browser.

Living with cancer· Appointment prep

Appointment sheet: Uterine sarcoma

One page to bring and write on: your details, the questions for Uterine sarcoma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Uterine sarcoma

Prepared with OnCo (onco.cc/prep/uterine-sarcoma/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

16 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example Histological subtype and mitotic count, Estrogen and progesterone receptor status, Fusion testing: JAZF1, YWHAE, BCOR, NTRK, ALK, Homologous recombination deficiency and BRCA alterations, Stage and whether the tumour was morcellated), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Localised, any subtype
  1. 5.For my situation (localised, any subtype), which of the standard options do you recommend and why?
Advanced or recurrent leiomyosarcoma
  1. 6.For my situation (advanced or recurrent leiomyosarcoma), which of the standard options do you recommend and why?
  2. 7.Am I a candidate for Doxorubicin, Trabectedin, Gemcitabine or related drugs, and what side effects should I expect?
Low-grade endometrial stromal sarcoma
  1. 8.For my situation (low-grade endometrial stromal sarcoma), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Letrozole (and other aromatase inhibitors), Progestins (megestrol acetate, medroxyprogesterone, levonorgestrel IUD), and what side effects should I expect?
Fusion-driven sarcoma
  1. 10.For my situation (fusion-driven sarcoma), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Larotrectinib, Entrectinib, Crizotinib or related drugs, and what side effects should I expect?
Any stage
  1. 12.Are there clinical trials I could join, for example of Trabectedin, Larotrectinib, Pazopanib?
  2. 13.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 14.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 15.I read that “Preoperative distinction of leiomyosarcoma from fibroids: MRI and LDH criteria and imaging AI are under study”. How does that affect my plan?
  5. 16.I read that “Advanced LMS remains chemoresistant after two lines: PARP inhibitors for the HRD subset and antibody-drug conjugates are in trials”. How does that affect my plan?

The words I may hear

  • Hysterectomy: Removing the uterus (womb), often with the cervix, tubes and ovaries.
  • Rare cancers: Rare cancers are those with fewer than about 6 new cases per 100,000 people per year.

Tests and results to bring

Biomarker results to ask for: Histological subtype and mitotic count, Estrogen and progesterone receptor status (ESS, some LMS), Fusion testing: JAZF1, YWHAE, BCOR, NTRK, ALK, Homologous recombination deficiency and BRCA alterations (subset of LMS), Stage and whether the tumour was morcellated.

Scans and tests linked to this cancer: Comprehensive genomic profiling, MRI.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call