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A US National Cancer Institute programme that gathers data on every child, teenager and young adult with cancer into shared resources, and pays for free tumour testing at diagnosis for some childhood cancers so that doctors can choose treatment and trials.
The NCI describes CCDI as building a community around childhood cancer care and research data, with three aims: to gather data from every child, adolescent and young adult diagnosed with a childhood cancer regardless of where they are treated; to create a national strategy for clinical and molecular characterisation to speed diagnosis and inform treatment; and to build a platform that brings clinical care and research data together. NCI states it is a $50 million federal investment made in each fiscal year since 2020, with an additional $50 million proposed each year for a total of ten years. The CCDI Hub is the entry point to the Childhood Cancer Clinical Data Commons, the Childhood Cancer Data Catalog and the Molecular Targets Platform.
Its Molecular Characterization Initiative offers DNA and RNA testing of tumour and blood at no cost to children and AYAs newly diagnosed with a central nervous system tumour, soft tissue sarcoma, high-risk neuroblastoma, a listed rare tumour, or metastatic Ewing sarcoma and treated at a Children's Oncology Group hospital, with results returned to the family and doctor; de-identified data are then shared with researchers. NCI also runs a CCDI Rare Cancer Study.
Shares NCI Cancer Research Data Commons (CRDC), National Cancer Institute (NIH) and the tag data.
Shares Adolescent and young adult (AYA) oncology, Childhood cancers (all types), Neuroblastoma (paediatric), Rare and paediatric cancers without markets and the tag research-funding.
Shares Ewing sarcoma, Childhood cancers (all types), Neuroblastoma (paediatric), Rare and paediatric cancers without markets and the tag research-funding.
Shares Data silos, Childhood cancers (all types) and the tag research-funding.
Shares Adolescent and young adult (AYA) oncology and the tag research-funding.
Shares National Cancer Institute (NIH) and the tag research-funding.
Shares National Cancer Institute (NIH) and the tag data.
Shares Childhood cancers (all types) and the tag research-funding.
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