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A US patient charity for ocular (uveal) melanoma, founded by patients in 2012, that gives financial help, peer support and education, and runs a patient registry and a biobank with Pattern.org.
A Cure In Sight was founded in 2012 by Melody Kling, Megan Bekkedahl, Laura Duvall and Tania Herfurth, a group of patients who saw others skipping medical care because of cost, according to its history page. It describes itself as a patient-focused nonprofit giving education, advocacy and guidance to people with ocular melanoma and their carers, and lists financial assistance, the Cure Companions peer programme, the OMG (Ocular Melanoma Getaway) holidays for people with metastatic disease and survivorship seminars. In 2020 it partnered with UCSF to launch the Insight Global Registry, which it calls the first self-reported ocular melanoma patient database. Pattern.org's home page describes the Insight Biobank for Ocular Melanoma as an advocacy-led biorepository that A Cure In Sight is building in partnership with Pattern.org, storing donated tissue, blood and clinical data and growing patient-derived cell lines. The IRS lists it in Raleigh, North Carolina, with tax exemption from September 2014.
Shares Biobanking and tissue procurement, Rare Cancer Research Foundation.
Shares Biobanking and tissue procurement, Rare Cancer Research Foundation.
Shares Biobanking and tissue procurement, Rare Cancer Research Foundation.
Shares Pattern.org and the Pattern Biobank, Rare Cancer Research Foundation.
Shares Pattern.org and the Pattern Biobank, Rare Cancer Research Foundation.
Shares Pattern.org and the Pattern Biobank, Rare Cancer Research Foundation.
Shares Pattern.org and the Pattern Biobank, Rare Cancer Research Foundation.
Shares Pattern.org and the Pattern Biobank, Rare Cancer Research Foundation.
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